M.E.G. & the Media

Working hard to raise awareness! And having fun too! 

Here are links to the media work I’ve been doing, there are more opportunities on the horizon, and I will post those as soon as they become available.

Enjoy! Learn! Share!

 
 
 

 

MDA’s Quest Magazine, Harry Potter and the Accessible Theme Park, October 6, 2010.

The Dana Foundation, Treatment for Adult-onset Pompe Disease Tried in First US Patient, September 10, 2010.

Ocala.com, Firefighters see first hand how Fill the Boot helps, September 3, 2010.

Health Radio: Insider’s Health Interview August 5, 2010

Dr. Barry Byrne – What is Pompe Disease?

Monique Griffin – New Treatment for Rare Genetic Disorder

MDA’s Quest Magazine Article, Lumizyme now commercially available for Pompe, June 21, 2010

Gainesville Sun Article, UF researcher lends hand in fight against muscle disorder, June 17, 2010

University of Florida Article & Video, UF doctors among first to administer new drug, June 17, 2010

One comment

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s