Here are links to the media work I’ve been doing, there are more opportunities on the horizon, and I will post those as soon as they become available.
Enjoy! Learn! Share!
MDA’s Quest Magazine, Harry Potter and the Accessible Theme Park, October 6, 2010.
The Dana Foundation, Treatment for Adult-onset Pompe Disease Tried in First US Patient, September 10, 2010.
Ocala.com, Firefighters see first hand how Fill the Boot helps, September 3, 2010.
Health Radio: Insider’s Health Interview August 5, 2010
Dr. Barry Byrne – What is Pompe Disease?
Monique Griffin – New Treatment for Rare Genetic Disorder
MDA’s Quest Magazine Article, Lumizyme now commercially available for Pompe, June 21, 2010
Gainesville Sun Article, UF researcher lends hand in fight against muscle disorder, June 17, 2010
University of Florida Article & Video, UF doctors among first to administer new drug, June 17, 2010