Thank you to everyone who supported our Scentsy fundraiser for Pompe Peeps Brad and Allyson. A big thank you to these super stars who placed orders during the fundraiser:
And of course another big thank you to our Scentsy Consultant Trinity Lawrence. I hope everyone is enjoying their Scentsy products as much as I am!
We managed to raise enough money to send each of them a Visa gift card. Brad has already received his gift card, and Allyson’s card is waiting for her at the University of Florida – she arrives in just a few days!
A few weeks ago I had the opportunity to meet up with Brad. He is doing really well and has noticed an improvement in his overall health since starting the drug trial.
I have a ton more updates to post, but I have been a bit occupied with back to back to back visitors as well as my usual Pompe adventures which include a couple of patient meetings, some media interviews for the MDA, and my 6 month check up at the Mayo Clinic. So please be patient with me as I try to get everyone caught up.