Marathon Monday


Monday, April 18th was the day of the 115th Boston Marathon. Over 24,000 runners from all over the world, took to the streets of Boston and pushed their bodies to the limit.

Everyone seems to have their own personal reason or reasons for running. For one runner, I was a reason. Angela DeLucco ran in my honor! You can read more about Angela and her fellow Genzyme runners HERE.

Angela finished the marathon with a time of 5:37:09. Way to go!

I will probably never be able to run a marathon, but on Monday I ran step by step with Angela – in spirit.

Congratulations to all the Genzyme runners! You are amazing!

Angela and I in Boston enjoying lunch at Genzyme. March 2011.


  1. Hi Monique,

    I just wanted to ask what kind of scooter you have? It’s the one you were on in the video where you were getting ready to receive your Lumizyme infusion. Dr. Barry Byrne was there with you. I’m thinking about getting a scooter, and I was just wondering what kind you have. I’m still waiting on the results of my Fabry’s DNA testing. If the results are negative, then I think I will have to give up hope of ever finding out what is wrong with me! It could take another two months before I get the results. You are so lucky to have gotten a definite diagnosis. I hope you are doing well. I love reading about your travels and adventures. Bye for now, and thanks! Donna

    1. Hey Donna! It is a Pride Go Go Elite Traveler. It is small and can be taken apart to fit in the trunk of a car. They run about $1700, give or take but with a prescription your insurance should cover all or most of it depending on your plan.

      I really hope you get answers, please do not give up. The truth is out there!


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