That’s right, this is another quick update and preview of information to come because my schedule is jam packed right now. I just returned from a trip to Europe with my friends Lonnie and Traci so there will be some Accessible Travel postings. While on my European adventure, I had the pleasure of meeting up with fellow Pompe warriors Sam, Ben, and Ashley in London as well as visiting the hospital in Amsterdam where Dr. Johannes Pompe worked. I have my 27th infusion tomorrow and then I will attend a patient meeting in the evening. On Thursday I fly to Boston to meet with Genzyme’s Patient Advisory Board and I will spend a few extra days exploring Boston with my best friend.
Other than being extremely exhausted, I am doing well and still fighting the good fight.