Wow – I knew it was going to be a busy September, but I‘m loving it! I’ve just returned from DC – more on that later including accessible travel and meeting up with another Pompe patient. I had a hassle free infusion yesterday, so I’m all powered up for my next overseas adventure – again, more on that later.
For now, here is a LINK to the latest Pompe awareness article that has been published by the Dana Foundation.
Also, just for fun, here is a LINK to a foreign article about Pompe. Can anyone translate?
Will blog with you soon!