I’m so excited to share this news with you. I had a physical therapy assessment this week and it showed that I had slightly increased strength in both my legs and arms!
That is still a little crazy for me to really wrap my head around. I mean, I know I’ve been working hard by sticking to my Lumizyme infusion schedule, along with my diet and physical therapy program – but to finally have tangible data that I’m really improving is… in a word: Thrilling!
Pompe is a progressive degenerative muscle disease. The course it is supposed to take is to make me weaker and weaker until… well, there’s obviously no reason to go down that dark alley now. I am stubborn, I always have been and I chose to fight back – so take that Pompe! I couldn’t have done it without the help of my entire medical team including my friends at Genzyme, Dr. Byrne, and my physical therapist Tina. You guys rock!
Again, take that Pompe!