I have been avoiding checking out Twitter ever since it joined the social networking scene. I just didn’t want learn about a whole new site nor did I see the need to. It seemed a little too trendy for me and I was quite happy with the connections I was making on Facebook, and still am. That was then – when it was all about me, just me.
This is now – a bigger picture has emerged and it‘s not all about me. I’ve been deemed a patient advocate, but until recently I never really believed I was. If I really am a patient advocate, I want to be the best one I can be. I want to reach as many people as I can to raise awareness about Pompe disease. I want to help and give support to other patients and families. So I caved, and recently set up a Twitter account. I figure the more venues I can use to help our cause, the better. I’m still learning the ins and outs of the site, but you can now follow me at: MElizabethGr