Enzyme replacement therapy saves and improves the lives of patients fighting Pompe Disease.
Right about now, if you’ve been following my blog, your thinking “duh” to yourself. I felt this was worth stating again, because now I’m going to ask you to help someone out using this “duh” knowledge.
Meet Allyson Lock. She was very recently diagnosed with Pompe Disease. She lives in Masterton, New Zealand and has been denied enzyme replacement therapy. She was told there simply wasn’t funding for it. Her GP is currently trying to generate the much needed funding.
Allyson is reaching out to the politicians and media in her area for help. I have also written to Minister of Health and Minister of State Services Hon Tony Ryall on her behalf. And now, I’m asking that all of you take 10 minutes to send an email to Tony Ryall. The more times his office is hit with the words “ALLYSON LOCK” and “POMPE DISEASE” and “ENZYME REPLACEMENT THERAPY” the less he can ignore it.
Please take 10 minutes to send him an email requesting his assistance in cutting through the red tape of bureaucracy so that Allyson may receive this life saving treatment. 10 minutes of your life can have a huge impact and help change someone’s life.