Progress in Pennsylvania

Emma, Me, Maddie - the fighters!

I am so excited for my friends Maddie and Emma up in Pennsylvania. After only 5 infusions there is actual documented evidence they are improving!

You can read all about their recent check up and their wonderful improvements in their father‘s latest blog entry: Maddie’s Mission: July Forecast….Reduced Snowflakes

Congratulations and keep up the good work! You are an inspiration to the whole Pompe community and a your progress let’s us all know there really is hope!

Keep Fighting Girls!

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