My second infusion was cancelled. One of the nurses running the study called and told me that Genzyme was having a production problem, and Myozyme was on back order. So they cancelled my March 29 appointment, but I’m still scheduled for April 12.
I head back to Mayo on April 9th to meet with the pulmonary specialist, the physical therapist, and I will stay overnight in the sleep lab.
Genzyme is hosting a local meeting/dinner on April 11 which I plan to attend. Genzyme representatives, doctors and patients have been invited. I am pretty sure my study doctor, Dr. Barry Byrne, is planning on attending.
April 9-12 will be a busy couple of days for me and I’m sure I’ll have more to report after all is said and done.