Now that I have been officially been diagnosed with Pompe Disease, I’m going to the movies and I ask that you do the same. Go see Extraordinary Measures this weekend starring Harrison Ford, Brendan Fraser and Keri Russell. I haven’t seen the movie yet, but I understand it was inspired by the true story of Matt Crowley who fought for a the development of ERT for his two children when they were diagnosed with Pompe Disease.
I hope this film will help spread awareness of this rare and relatively unknown disease. If nothing else, when was the last time these three actors made a movie that sucked, you’re at least in for a good flick right? What do you have to loose? And maybe, just maybe you’ll gain a little insight into what I’m going through. I don’t know, like I said I haven’t seen the movie and the disease effects everyone different and really effects children and adults differently, but I do believe it will help raise awareness for Pompe Disease so grab a friend and go to the movies.