M.E.G.'s Confessional

My Mystery Disease is Pompe

Pompe Power

 

The wristband says Pompe Power on one side and http://www.amda-pompe.org on the other.

When I visited with the Crowley family last month, they were kind enough to give me my very own Pompe Power wristband. I have worn mine everyday since – even to my sorority’s formal banquet last week! Hey, it was the same color as my dress.

They also told me how to order more wristbands and I just placed an order so I can hand them out to my friends and family. I’m sure some of you are wondering how you can order them too. I spoke with Marsha Zimmerman at the Acid Maltase Deficiency Association (AMDA) who handles the orders and she gave me permission to post the ordering instructions here.

To order online you will need a Pay Pal account. If you don’t already have one, it is easy enough to set up. You can also mail a check if you don’t have a Pay Pal account.

To order online:

Go to the AMDA website at: http://www.amda-pompe.org/index.php/main/

Click on the “Make A Donation” button in the upper right of the screen to make a donation for the amount of Pompe Power wristbands you would like. They are $1 each.

The site does not offer a way to distinguish between a general donation to the AMDA and purchasing wristbands. After you make your payment, email Marsha Zimmerman at zimmermanm@uthscsa.edu to let her know you placed an order for wristbands and let her know how many you ordered.

Once your order has been confirmed by the site Marsha will mail the wristbands to you. It is that easy! Soon you too will have your very own Pompe Power wristband.

To order by check:

Send a check made out to the AMDA for the amount of wristbands you would like ($1 each) to:

AMDA

PO Box 700248

San Antonio, Texas 78270

Be sure to include a note in the memo indicating the donation is for Pompe Power wristbands and then email Marsha to let her know the check is on the way.

Pompe Power!

 

4 Comments »

Follow

Get every new post delivered to your Inbox.

Join 77 other followers