M.E.G. & the Media

Working hard to raise awareness! And having fun too! 

Here are links to the media work I’ve been doing, there are more opportunities on the horizon, and I will post those as soon as they become available.

Enjoy! Learn! Share!

Ivanhoe Broadcasting, Health Alert – Pompe Disease OR Cracking the Code: Pompe Disease, January 9, 2011

 

Explore Magazine, Research at the University of Florida, Extraordinary Measures: The true story of Barry Byrne’s efforts to cure Pompe Disease is even more compelling than the movie, Fall 2010.

 

 

 

MDA’s Quest Magazine, Harry Potter and the Accessible Theme Park, October 6, 2010.

The Dana Foundation, Treatment for Adult-onset Pompe Disease Tried in First US Patient, September 10, 2010.

Ocala.com, Firefighters see first hand how Fill the Boot helps, September 3, 2010.

Health Radio: Insider’s Health Interview August 5, 2010

Dr. Barry Byrne – What is Pompe Disease?

Monique Griffin – New Treatment for Rare Genetic Disorder

MDA’s Quest Magazine Article, Lumizyme now commercially available for Pompe, June 21, 2010

Gainesville Sun Article, UF researcher lends hand in fight against muscle disorder, June 17, 2010

University of Florida Article & Video, UF doctors among first to administer new drug, June 17, 2010

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